WELCOME

A collection of websites, online groups, and resources to connect with and support other zebras. Please know you’re never alone.

If you run a group or would like one added, please send us a note.

High Grade NETs Facebook group

Run by our very own Susan Sylvan Plummer, and 100% dedicated to High Grade patients and their caretakers.

Minkah the Golden Facebook group

Yes, our very own Minkah, our mascot and beloved golden retriever, has his own Facebook page and is a very good distraction for patients.

NETs patients and CAPTEM Facebook group

A private discussion group for NETs patients and their caretakers who are taking, have taken or are considering CAPTEM as a treatment for Neuroendocrine Cancer

Healing NET Foundation

The Healing NET Foundation began when a neuroendocrine cancer patient and the expert physician who treated her agreed that more doctors need up-to-date and accurate knowledge of neuroendocrine cancer and that all patients deserve to be seen by well-informed doctors.

Zebra Angel Support Facebook group

A private group for those from all who have been through the pain of grief and of the journey we've been forced to take.

Zebra Caregivers talk NETs Facebook group

A private group for caregivers of NETs and NEC patients.

Neuroendocrine Cancer UK Facebook group

Friends of NCUK FB page is open to the whole Neuroendocrine Cancer community - UK and Global - patients, family, friends, patient advocates and healthcare professionals.

Carcinoid Cancer Foundation

The Carcinoid Cancer Foundation is a nonprofit organization chartered by the State of New York for the purpose of encouraging and supporting education and research on carcinoid and related neuroendocrine cancers. It is a great source for low grade.